Volume 11, Issue 4 (2023)                   Health Educ Health Promot 2023, 11(4): 531-537 | Back to browse issues page


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Mayih Dakhil M, Shirinabadi Farahani A, Nourian M, Nasiri M, Babaie M. Quality of Self-Care in Adolescents with Major Thalassemia Referred to Selected Thalassemia Centers in Iran. Health Educ Health Promot 2023; 11 (4) :531-537
URL: http://hehp.modares.ac.ir/article-5-71056-en.html
1- Department of Pediatric and Neonatal Intensive Care Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran
2- Department of Biostatistics, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran
3- Department of Anesthesiology, School of Allied Medical Sciences, Alborz University of Medical Sciences, Karaj, Iran
Abstract:   (467 Views)
Aims: Adolescents who suffer from chronic diseases, such as major thalassemia are more susceptible to physical, mental, emotional, spiritual, educational, and social self-care failure. These factors are generally more likely to be overcome if affected adolescents have a high level of self-care. This study aimed to assess self-care quality in adolescents with major thalassemia.
Instrument & Methods: This descriptive cross-sectional study was performed on 200 adolescents with major thalassemia selected by convenience sampling. The Self-Care Assessment Questionnaire (SCAQ) with 52 items in six dimensions was used for data collection. Data were analyzed using descriptive statistics, independent t-test, Pearson correlation coefficient, and ANOVA.
Findings: There was no significant relationship between socio-demographic characteristics and the dimensions of self-care in participants. Adolescents with major thalassemia were found with a high score of quality of self-care. The highest mean scores were related to the dimensions of “emotional/mental self-care (2.44±0.64)”, “social self-care (2.08±0.61)”, and “spiritual self-care (2.07±0.62)”, respectively.
Conclusion: It is recommended that this issue be investigated in other adolescent patients, considering the importance of self-care and its effects on various aspects of quality of life in chronic diseases. Also, planning and implementing patient education is another important management measure to promote self-care in these adolescents.
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Article Type: Descriptive & Survey | Subject: Quality of Life
Received: 2023/08/14 | Accepted: 2023/10/3 | Published: 2023/10/18
* Corresponding Author Address: Opposite to Rajaee Heart Hospital, Cross of Vali-Asr Avenue and Hashemi Rafsanjani (Neiaiesh) Highway, Vali-Asr Avenue, Tehran, Iran. Postal Code: 1919973361 (farahani1381@yahoo.com)

References
1. Vidyarthi UC, Kumar A. Assessment of haematological parameters in thalassemia in paediatric patients. Int J Med Health Res. 2018 4(1):109-11. [Link]
2. Mevada S, Al Saadoon M, Zachariah M, Al Rawas A, Wali Y. Impact of burden of thalassemia major on health-related quality of life in Omani children. J Pediatr Hematol Oncol. 2016;38(5):384-8. [Link] [DOI:10.1097/MPH.0000000000000565]
3. Dehshal MH, Namini MT, Darestani SY, Razieh H. β-Thalassemia in Iran: Things everyone needs to. Hemoglobin. 2019;43(3):166-73. [Link] [DOI:10.1080/03630269.2019.1628774]
4. Sadek EH, Elsayh KI, Mohammed FZ, Mohamed NT, Faheem SS. Self-efficacy of adolescents with thalassemia major. Assiut Sci Nurs J. 2020;8(22):72-85. [Link] [DOI:10.21608/asnj.2020.87263]
5. Vosoghi KN, Abootalebi DG, Farahani B, Mohammadnezhad E, Sajjadi A. The study of self-care agency in patients with diabetes (Ardabil). Mod Care J. 2012;8(4):197-204. [Persian] [Link]
6. Bohanny W, Wu S, Liu C, Yeh S, Tsay S, Wang T. Health literacy, self-efficacy, and self-care behaviors in patients with type 2 diabetes mellitus. J Am Assoc Nurse Pract. 2013;25(9):495-502. [Link] [DOI:10.1111/1745-7599.12017]
7. Tufts K, Wessell J, Kearney T. Selfcare behaviors of African American women living with HIV: A qualitative perspective. J Assoc Nurses AIDS Care. 2010;21(1):36-52. [Link] [DOI:10.1016/j.jana.2009.07.006]
8. Cohen J, Saylor C, Holzemer WL, Gorenberg B. Linking nursing care interventions with client outcomes: A community-based application of an outcomes model. J NursCare Qual. 2000;15(1):22-31. [Link] [DOI:10.1097/00001786-200010000-00004]
9. Coyle M, Martin E. Reflecting on a self‐care process in the home setting for traumatic brain injury survivors. J Neurosci Nurs. 2007;39(4):274-7. [Link] [DOI:10.1097/01376517-200710000-00003]
10. Somrongthong R, Hongthong D, Wongchalee S, Wongtongkam N. The influence of chronic illness and lifestyle behaviors on quality of life among older Thais. BioMed Res Int. 2016;2016:2525941. [Link] [DOI:10.1155/2016/2525941]
11. Gupta P. Essential Pediatric Nursing. 4th ed. New Delhi: CBS Publishing & Distributors; 2017. [Link]
12. Lenoci J, Telfair J, Cecil H, Edwards R. Self-care in adults with sickle cell disease. West J Nurs Res. 2002;24(3):228-45. [Link] [DOI:10.1177/01939450222045879]
13. Dickson VV, Nocella J, Yoon H, Hammer M, Melkus G, Chyun D. Cardiovascular disease self-care interventions. Nurs Res Pract. 2013(40). [Link] [DOI:10.1155/2013/407608]
14. Saakvitne KW, Pearlman LA. Transforming the pain: A workbook on vicarious traumatization: New York: W.W. Norton & Company, Inc; 1996. [Link]
15. Latipun L, Amalia DR, Hasanati N. Relation social support and psychological well-being among schizophrenic patients: Self-Care as meditation variable?.Amsterdam: Atlantis Press; 2019. [Link] [DOI:10.2991/acpch-18.2019.1]
16. Eftekhar H, Mirkamali SK, Tavafian SS, Mohammad K, Shahnazi H, Sharifirad G. Exploring self care in Tehran, Iran: A population based study. J Res Med Sci. 2012;17(12):1144-9. [Link]
17. Babaie M, Farahani AS, Nourian M, Hosseini M, Mohammadi A. Assessment of procrastination in providing nursing care among Iranian nursing staff. BMC Nurs. 2022;21(1):343. [Link] [DOI:10.1186/s12912-022-01132-5]
18. Drost EA. Validity and reliability in social science research. Educ Res Perspectives. 2011;38(1):105-23. [Link]
19. Masinaienejad N, Abdollahi Mohammad A, Jahantigh F, Zamani Afshar M, Allahyari J. The impact of self-care education based on Orem's model on self-care behaviors of patients with β-Thalassemia major: A clinical trial. Med Surg Nurs J. 2019;8(3):e96823. [Link] [DOI:10.5812/msnj.96823]
20. Arazi S, Karahroudi FA, Rouhani C, Puorhoseingholi A, Vasli P. The effect of health promoting education plan on adolescents' lifestyle in patients with thalassemia major. J Nurs Educ. 2017;6(1):16-22. [Persian] [Link]
21. Kaheni S, Yaghobian M, Sharefzadah G, Vahidi A, Ghorbani H, Abderahemi A. Quality of life in children with β-thalassemia major at center for special diseases. Iran J Ped Hematol Oncol. 2013;3(3):108. [Link]
22. Atashpeikar S, Jalilazar T, Heidarzadeh M. Self-care ability in hemodialysis patients. J Caring Sci. 2012;1(1):31-5. [Link]
23. Moghadam MP, Nourisancho H, Shahdadi H, Shahraki S, Azarkish B, Balouchi A. Effects of home-care training on the self-efficacy of patients with beta thalassemia major. Mater Sociomed. 2016;28(5):357-60. [Link] [DOI:10.5455/msm.2016.28.357-360]
24. Riegel B, Jaarsma T, Strömberg A. A middle-range theory of self-care of chronic illness. ANS Adv Nurs Sci. 2012;35(3):194-204. [Link] [DOI:10.1097/ANS.0b013e318261b1ba]
25. Borimnejad L, Parvizi S, Haghaani H, Sheibani B. Investigating the awareness and educational requirements of adolescents with thalassemia and active members of the afflicted families in Bandar Abbas, Iran. Dev Strategies Med Educ. 2017;4(1):68-75. [Link]
26. Gharaati F, Aghamolaei T. Effect of a mobile-phone mediated based education on self-care behaviors of patients With thalassemia major. J Caring Sci. 2019;8(3):149-55. [Link] [DOI:10.15171/jcs.2019.022]
27. Madmoli Y, Akhaghi Dezfuli S, Adavi A, Maraaghi E, Heidari Soureshjani R, Madmoli M. The effect of orem self-care on mental health of patients with thalassemia major. J Clin Nurs Midwifery. 2018;7(2):108-15. [Link]
28. Shaligram D, Girimaji S, Chaturvedi S. Psychological problems and quality of life in children with thalassemia. Indian J Pediatr. 2007;74(8):727-30. [Link] [DOI:10.1007/s12098-007-0127-6]
29. Pouraboli B, Abedi HA, Abbaszadeh A, Kazemi M. Self-care in patient with major thalassemia: a grounded theory. J Caring Sci. 2017;6(2):127. [Link] [DOI:10.15171/jcs.2017.013]
30. Yang H, Chen Y, Mao H, Lin K. Illness knowledge, social support and self care behavior in adolescents with beta-thalassemia major. Hu Li Yan Jiu. 2001;9(2):114-24. [Link]
31. Du Bois WE. I. of our spiritual strivings. New Haven: Yale University Press; 2015. [Link]
32. Dalvand S, Shirinabadi Farahani A, Rassouli M, Nasiri M, Babaie M, Yousefiasl S. The effect of spiritual intelligence training on the hope and self-transcendence in mothers of premature neonates. Evidence Based Care J. 2021:11(3);35-34. [Link]
33. Iri Z, Hojjati H, Akhoondzadah G. The impact of spiritual self-care education on self-efficacy in adolescents with Thalassemia in children's hospital Taleghani Gonbadkavoos Golestan 2017-18. Iran J Nurs Res. 2019;14(1):8-13. [Persian] [Link]
34. Hart SL, Hoyt MA, Diefenbach M, Anderson DR, Kilbourn KM, Craft LL, et al. Meta-analysis of efficacy of interventions for elevated depressive symptoms in adults diagnosed with cancer. J Natl Cancer Inst. 2012;104(13):990-1004. [Link] [DOI:10.1093/jnci/djs256]
35. Tuck I. A critical review of a spirituality intervention. West J Nurs Res. 2012;34(6):712-35. [Link] [DOI:10.1177/0193945911433891]
36. Afaghi Roveshty M, Shirinabadi Farahani A, Memaryan N, Rassouli M. Effect of spiritual care on hope and self-transcendence of mothers of premature neonates hospitalized in the neonatal intensive care unit. Iran J Neonatol. 2020;11(4):106-13. [Link]
37. Shirinabadi Farahani A, Rassouli M, Yaghmaiee F, Alavi Majd H. Hope, the foundation of spiritual health in adolescents: A qualitative study. Iran Red Crescent Med J. 2016;18(12). [Link] [DOI:10.5812/ircmj.29328]

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